Friday, February 16, 2007

Welcome!

Growing up, some of my friends affectionately described parts of my vocabulary as "Becky words." Until someone corrected me in middle school, I always thought the word "herb" was pronounced with an emphasis on the letter h. I never knew it was silent! Cello was "shello" and chocolate was "shocolate."

This year, some of my "Becky words" just might fade into extinction.

This past November, my older brother, Matt, emailed me a link to a CNN news briefing reviewing recent technological developments of the cochlear implant. Specifically, the news article reviewed Advanced Bionic's latest developments. From that first day reading about the HiResolution Technology, I was hooked.

After a month of research, I made a very personal decision to begin the candidacy process of obtaining a cochlear implant.

On March 8, 2007, I will have the surgery at John Hopkins Hospital.

For many of you, this will be the first time you're hearing about this. Outside my most immediate family members and a few friends, I have kept this information to myself. In order to have the procedure, I had to be medically tested to determine my eligibility to receive the implant. Just last week, I completed the final medical exam, which was a CT scan of my brain and the anatomy of my ear. Until the medical team at John Hopkins gave me a thumbs-up, I maintained a very guarded optimism about the procedure. I was worried that because I do so well with lip-reading and bilateral hearing aids, I would not be eligible to receive the implant.

My concerns were put to ease when both of my primary doctors on the surgical team echoed their decisions: "You are an excellent candidate for a cochlear implant." I couldn't believe it! I still can't believe it.

As they explained, there are two primary reasons behind their decision.
1. My medical diagnosis is progressive hearing loss. When I was born, I was most likely hearing. Doctors believe I began to lose my hearing immediately after birth. After I was fitted for bilateral hearing aids as a toddler, my hearing continued to decline incrementally throughout my childhood. The point is this: my brain knows what sound, sounds like. My brain has a stored vocabulary of what a dog's bark is, what a lawn motor sounds like, and what laughter means. Therefore, when the implant is activated, neural pathways in my brain will transform the vibrations into meaningful sounds.

2. I lip-read like its my job! In order to understand simple human conversation, I rely 99% on lipreading. I also use environmental cues to figure out what a sound is. These are cognitive and problem-solving skills that I will use when I'm learning to hear with the implant. My implant will receive the sound, my brain will register it, then I will lip-read or see the book that just fell on the floor, and figure out exactly what I just heard. This process will take six to twelve months before I begin to see real results.

A cochlear implant is absolutely not a cure. Rather, it is a very powerful technological device that will allow me the opportunity to hear a much greater range of frequencies of sound. My hearing loss limits how much of the letter "s" I hear, or the word "grass" I understand. The implant, with intensive therapy and training, will enable me to possibly hear all of the letter "s" and all of the word "grass." Eventually, my sound comprehension will increase dramatically and understanding simple conversations will become much easier for me.

Starting the process of receiving a cochlear implant is definitely a milestone decision in life. Since Matthew and I are living in Fairfax, Virginia, far away from our closest family and friends, I needed to come up with a way to share my news and as the months go by, highlights of my therapy. Sending the same generic email to everyone seemed impersonal so Matthew made the excellent suggestion that I create a blog! My sister-in-law, Leah, started a blog to document her experiences as a 1st year medical student and we've enjoyed reading it so much. Her blog keeps us informed of whats going on with her, 500 miles away in snowy Vermont!

On a regular basis, I will post updates as the weeks go by with the implant. I'll post again before the surgery to explain more about why I've decided now to get the surgery. You'll be able to write back, or leave comments, if you want to. I hope you enjoy my blog and I'm looking forward to sharing my experiences with you!

Love,
Becky





4 comments:

Anonymous said...

becky i'm so excited for you!!! i hope everything works out well! :)

Love
Leslye

Anonymous said...

My dear Becky-
You sound like a speech pathologist--I am so impressed with your research and am anxious to share in what I believe will be an incredible successful adventure.
I will be praying for you and anxiously awaiting details-- love to Matthew

Anonymous said...

Becks!!! I LOVE the idea of a blog and can't wait to track your amazing progress through this exciting new phase of your life! Thank you for sharing with everyone and I am so beyond proud of you for taking something so new and obviously a bit scary and putting your usual insanely positive outlook on things! HUGS and LOVIN from Philly!

Kimmy

Anonymous said...

We are so excited for you, and cannot wait to hear how the whole process is going to work! Hey matty, you better watch what you say now when you are talking, quote unquote "under you breath"! HAHAHA, just kidding. We love ya Becky, GOOD LUCK!

Heather and Jesus